Comments on: Life With Ehlers-Danlos Syndrome Chronicled in New Documentary https://belocipriani.com/life-with-ehlers-danlos-syndrome-chronicled-in-new-documentary/?utm_source=rss&utm_medium=rss&utm_campaign=life-with-ehlers-danlos-syndrome-chronicled-in-new-documentary Digital inclusion strategist and disability advocate Sun, 26 Jan 2020 02:42:44 +0000 hourly 1 By: Belo Cipriani https://belocipriani.com/life-with-ehlers-danlos-syndrome-chronicled-in-new-documentary/#comment-34 Sun, 26 Jan 2020 02:42:44 +0000 https://belocipriani.com/?p=1547#comment-34 In reply to Jess Rick.

Hello! Please visit the filmmaker’s website (Karina Sturm) to inquire about additional screenings of the film (link at the end of the post). Thanks for the comment!

]]> By: Jess Rick https://belocipriani.com/life-with-ehlers-danlos-syndrome-chronicled-in-new-documentary/#comment-33 Fri, 24 Jan 2020 23:46:59 +0000 https://belocipriani.com/?p=1547#comment-33 Is this documentary viewing yet to the general public? I’d greatly like to see it! My daughter is 15 yrs old and shortly it undergo genetic testing for vEDS. They believe she has hEDS. She has chronic pain since younger age but only now realizing it was something to be looked into.

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